“I’m sorry to say, that it’s Type 1 Diabetes.” ~ Two years ago today, our youngest child was diagnosed with T1D.
We thought our son was allergic to sugar. It started out with a meltdown every time he ate sugar but his symptoms escalated from there. So we went out of our way to make sure he didn’t eat any sugar. After having him checked, it turned out that he had a severe gluten allergy, so he was treated.
Meanwhile, we’re packing and getting everything ready to move to Missouri (from Arizona) so we wanted to have him treated and cleared of this allergy before we left. But it wouldn’t clear. After going back to our doctor to try to figure out what was going on with our youngest, blood work revealed higher than normal blood sugar and we were told to go to his primary care doctor ASAP.
(BTW~ He is two years gluten-free. Blood work doesn’t reveal anything but his symptoms are still too severe to test for Celiac’s Disease.)
Trying to get some dental work done before our move since I had a horrific toothache, I had an early dental appointment for 3 fillings and an extraction (turned into dry socket UGH!!!) I picked my husband up from his last day at work, went to the doctor to make an appointment in person, headed home to be on the phone with realtors and the moving company until our doctor appointment later in the afternoon.
His blood sugar was elevated at his appointment so our doctor told us to go straight to Phoenix Children’s Hospital and she would call ahead to let them know we were coming.
At the hospital, the doctor told us not to worry that with a severe gluten allergy and messing around back and forth with eating gluten and then going on a gluten-free diet will for sure mess with one’s blood sugar. She said to relax while they do blood work to know for sure.
She came back an hour later and said, “I’m sorry to say, that it’s Type 1 Diabetes.” My heart sank! My brother has T1D so I knew a little bit about what was involved but I was shocked at how much I truly didn’t know!
Our lives would never be the same.
We were in the hospital for 3-4 days learning everything we can about treating T1D and managing his blood sugar. This would be our full time job from this moment on. Jayce was 5.
We watched them give him his shots and check his blood sugar. We spoke to dietitians, coaches, doctors, and trainers. We learned about T1D, blood glucose, the pancreas, carbs, math, calculations, how to figure out dosage and more. They taught Jayce about T1D, they taught our older children about T1D, they gave our son gifts and toys and books and backpacks. They were wonderful! They were helpful! They educated us!
On the second or third day the nurse came in to give him his shot and stood there smiling at me. I wasn’t sure what she was waiting for so I smiled back.
“Are you ready to give him his shot?” She asked me with a grin. Ummmm….Yeees? I wasn’t! I was never going to be ready. But I pretended to have confidence like I’ve done so many times in the past just by being a mom period. Just grin and fake it. Am I the only one who feels that way when it comes to parenting?
So I figured out the dosage and fumbled awkwardly with the syringe and insulin bottle, trying to get it just right with only the medication and no air. I had an audience of nurses and our family watching me give our 5 year old a shot in the leg. I pinched his little leg, got the shot ready, gave him the shot, Jayce moved his leg before I could give him the insulin so I had to poke him twice. He said he didn’t want me to give him the shot. I didn’t want to either. But I did and we all survived WHEW.
In fact, my husband and 3 older children have all given him shots. Jayce has given himself a shot or two but he’s not quite ready to do this on his own regularly.
While we’re thankful that there is a treatment and hopeful for a cure, this has been a challenge for our whole family. It has only been two years but it feels like a life time!
I am weak and I lack strength.
Do you not know? Have you not heard? The LORD is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary, and his understanding no one can fathom. He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint. Isaiah 40: 28-31
And now, O Lord, for what do I wait? My hope is in You. Psalm 39:7
I lack faith.
Trust in the LORD with all your heart, and do not lean on your own understanding. Proverbs 3:5
I am afraid.
When I am afraid, I put my trust in You. Psalm 56:3
~ Keeping his blood sugar in the safe zone is agonizing
~ Calculating carbs and figuring out his insulin dose is challenging
~ Giving shots with every meal is getting easier
~ Checking his blood sugar is annoying
~ Changing his Continuous Glucose Monitor is tough
~ Knowing how to treat highs is necessary
~ Treating lows is scary
~ Checking on him during the night is daunting
~ Worrying about him is constant
~ But God is our strength and gives us courage and hope
~ We are not alone
My hope is that this article is a blessing to you. My prayer is that your faith is strengthened. God is always there. You are never alone. Please subscribe to my blog and have a great day!
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